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Long-term health outcomes of people living with spina bifida

Centers for Disease Control - NCBDDD · Opportunity number CDC-RFA-DD-26-0222

View the official notice on Grants.gov
10 days left (deadline Oct 26, 2026)

Details summarized from the official notice as of Oct 15, 2026. Always confirm eligibility, deadlines and requirements in the official notice before applying.

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Key facts

Opportunity numberCDC-RFA-DD-26-0222
AgencyCenters for Disease Control - NCBDDD
Department of Health and Human Services
Assistance listing (ALN, formerly CFDA)93.073
PostedAug 26, 2026
DeadlineOct 26, 2026
Award ceiling$300,000
Award floor$100,000
Expected number of awards19
Estimated total program funding$3,000,000
Cost sharing or matching requiredNo
Funding typeCooperative agreement
CategoryHealth
Last updated hereOct 15, 2026

Summary from the notice

The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB

Who can apply

The official notice lists these applicant types as eligible:

  • State governments
  • City or township governments
  • Private colleges and universities
  • Small businesses
  • County governments
  • Nonprofits with 501(c)(3) status (other than colleges)
  • Independent school districts
  • Special district governments
  • Nonprofits without 501(c)(3) status (other than colleges)
  • Federally recognized tribal governments
  • For-profit organizations other than small businesses
  • Public and state colleges and universities

Who should take a closer look

  • Small businesses
  • Nonprofits
  • Colleges and universities
  • State governments
  • Local governments
  • Tribal governments and organizations
  • Larger for-profit companies

Not listed as eligible

  • Individuals

Unless the eligibility text in the notice names you, this opportunity is probably not for you.

Registrations you will likely need

Most applications submitted through Grants.gov need the following. Registration can take several weeks, so start early. The notice lists the exact requirements.

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